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NPS Worldwide
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NPS Worldwide
25826 Norrington Square
South Riding, VA 20152

npsw@nailpatella.org


Nail Patella Syndrome Worldwide
Welcome to Nail Patella Syndrome Worldwide

Thank you for visiting. We encourage you to browse our site to learn more about NPS, how you can get involved and resources that are available to you.

Please Contact Us if you have any questions about the content or structure of this website.

Thank you for visiting.
Definition of NPS
What is NPS?

Nail Patella Syndrome (also called Fong's Disease, Hereditary Onycho-Osteodysplasia ['HOOD'] is characterized by several typical abnormalities of the arms and legs as well as kidney disease and glaucoma. It has been recognized as a hereditary condition for over 100 years and is inherited in an autosomal dominant manner. That is, the risk of transmission is 50% per pregnancy, irrespective of gender (just like flipping a coin). Approximately 20% of cases are sporadic, being the result of a new mutation. The incidence is approximately 1 in 50,000 and occurs throughout the world in all ethnic groups.
NPS Annual Conference


Click Here For The Most Current Information On The 2005 Nail Patella Syndrome Worldwide Conference

This year the annual conference will be held at the Grosvenor Hotel and Resort at Walt Disney World in Orlando, FL.
Our Website
What is the purpose of this website?

Nail Patella Syndrome is a complex condition that varies greatly between each individual. The purpose of the website is to provide information to each specialist field of medicine so that they may recognize those with NPS, as well as to provide contact personnel should further information be needed in the care of those diagnosed. In addition, this website hopes to provide information to the general public so that people who are just discovering that they have NPS have a place to go for information.

Orthopedics, Nephrology, Ophthalmology and Genetics have been highlighted as these are the specialist fields of medicine commonly associated with NPS. There are many other areas that should be included, for example Rheumatology, but for the moment we should concentrate on the four mentioned above. Please visit the Medical Involvement page for a more in depth look at each area.
Clinical Research

Please click this image for an invitation to participate in Clinical Research
Thank You for Visiting
Please Contact Us to send general questions to NPSW.org

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Nail Patella Syndrome Worldwide
25826 Norrington Square
South Riding, VA 20152

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Please send all other questions/comments or for questions about this website, please email: webmaster@nailpatella.org.